Monday, September 25, 2017
It's Been a While...
Saturday, October 8, 2016
My Godsent Army
This isn't my first extremely difficult time in my life since kids. The first time was around 5ish years ago soon after my Zeker's was born. At that time Aaron and I knew we couldn't live/get through life without asking for help. So, God led us to 3 families, 2 of which we didn't know really at all. For us (me) it was unheard of to ask someone for help much less this level of help. We were asking these people to HELP. They were committing to time, effort, love, direction, and many more things that I can't name because I don't know what all they did for me. They fought for me, they helped with childcare, they fought me which may of been the most difficult. They made really hard calls, like sending their friend to the hospital when it was needed.
None of us knew where to start, what to look for and how all of this aligned with a Christian faith. I'm so thankful that I wasn't judged for needing help and they have stood by and still stand by me. These three families were the main sources of support the first time around and they each had very different roles. One friend helped in a very practical way, she helped me with the boys every single week day, I wasn't at a point that I could give my boys what they needed so she filled that need. The other two had similar roles, both sound theological and practical advice and really being in the ugly dark trenches of my head. One was like a big sister and the other was able to have a perspective on the situation that well, I don't really know how that worked but it did and that's what was needed. There is absolutely no way that I can thank them or repay them in a way that they deserve. My church tried to be understanding but really didn't know what to do with a mental health crisis, it hadn't happened so publicly before.
Now this time around we all have experience. To my surprise my friends jumped right back into the roles they had before. Asking if I should see the Dr. and set up counseling appointments. (We hadn't stayed super close after I had gotten 'well', which was probably for the best.) I couldn't believe that they would willingly put themselves back into this crazy difficult journey, I didn't even ask, they saw what was happening and stepped into the roles they I needed them to play. If that isn't Christ like selfless love I don't know what is.
This time however the church body has been so understanding. They have been helpful in ways that I can't even imagine and mental illness is not taboo anymore. There is a freedom to acknowledge the difficulties that I'm facing. There is a freedom to talk openly with me, check in with me, and me writing this that keeps people aware of what life is like right now. I am asked about how I'm doing, when I'm going to be home, how things are... It's felt so strange at first to be in a community that truly loves and cares about me. I have never had the 'do not be anxious about anything (Phil 4:6-7) verse shoved in my face by my anyone in my church, or any of my support system. I really am thankful for those who realize the difference between situation anxiety and an anxiety illness. Some others have used words like these to try encourage me, I think, or at least I hope, in the past. However, what gets communicated is 'you don't have enough faith' or 'you have no reason to be'... or my favorite 'you're just doing this for attention'.
Now I am home, I'm loved for who I am PTSD, agoraphobia and all. I am so supported by friends and family. I am challenged to keep getting better. I get checked in on, helped, and encouraged. I have a group of people, a support system, that has helped, is helping and I'm confidant will continue to help. They've proven themselves in so many ways: they stay, they show they care, they challenge, they pray, they push or pull. They are together such a strong group of people and they completely counter so many of the lies that play in my head. I am so blessed by God to be in a church who shows Christ's love through His people. Perfect no, trying yes, loving yes, real yes.
I am also very aware that most people don't have a support system like I do and I know how difficult it is. So, I encourage you if you don't have anyone to talk to try to find one person who will listen, even if it's by text. I'll listen, but I only have experience no training and I'll try to help you find someone who is more reliable than myself as I'm still going through the muck...
So, thank you to all the people who have supported me thus far and will support me and my family in the future.
Thursday, September 22, 2016
Breathe in and now let it out
Thursday, July 14, 2016
The Next Step in the Journey
Friday, June 24, 2016
IOP & Transitioning Home
Wednesday, May 11, 2016
10 years and a tough week
Friday, April 22, 2016
The transition to IOP
Wednesday, April 6, 2016
Flip Flops
Saturday, April 2, 2016
Being tired...
Tuesday, March 15, 2016
Catch Up
Last time I posted was back in October, things have changed but some have stayed the same. I'm still in PHP at Rogers in the Milwaukee area and therefore away from my family except weekends. That's rough, but I know this is where i need to be right now.
Now to play catch up...
November I still felt like I was progressing and i was having nightmares and flashbacks and i was a really difficult time but I was moving. December I got 'stuck' I couldn't process things any more. My brain was tired and needed a break but I wouldn't stop, I wanted to push through. Meanwhile, my depression symptoms started becoming more intense really fast. I told a friend that I didn't know if i was going to be in the hospital for Christmas. She was the only person I said anything like that to, I told others I was struggling but to that extent. I got a day off PHP for Christmas and I was at home for Christmas and had lots of company. I cooked a brisket (because I'm from Texas and there is never a bad time to eat beef) and some other stuff with the help of my MIL. Everyone came over and we ate and celebrated. I was physically there but I want really engaged in what was going on. I tried but I couldn't do anything about how I felt.
The next week was another short week because of new years. Everyday we have check in sheets that ask how we are doing what things happened (dissociated flashbacks self harm panic attacks...) where we feel like our mood and anxiety are at and if we are having any suicidal thoughts. On the 30th I circled yes and I was thinking IMO having thoughts that doesn't mean I'm going to act on them. Well my treatment team saw things differently. They suggested that i voluntary go to inpatient at their hospital down the road. I didn't think I needed that yet and was very angry that I didn't really have a choice in the matter. I know I wasn't doing well so eventually I went voluntarily but against my will. My other choice was they would call the cops, I'd be taken out in handcuffs have a mandatory stay of three days then go before a judge. I said ok before I even knew that's how Wisconsin does things of this sort, and I have no idea what comes after that. That began my long inpatient stay.
After a few days to a week I was able to see why I was sent to the hospital. I didn't think I was done spiraling down and I West but they thought it would be better for that to happen in the hospital and maybe that it would slow the fall. It didn't but since I was already in the hospital I didn't have to make any decisions about where I was at. My treatment team saw what I couldn't see, they were able to see what my mood was like, how terrible I looked and how disengaged from life I was.
While in the hospital some crazy things happened with other patients but I was around and witnessed things. It was just weird. As for me, I struggled and after a while of letting my brain, rest by reading and getting lost in books, the Dr. arranged for my therapists to come see me there. This wasn't a 3 to 5 day turn around, I was going to be three a while. So, in the safety of the hospital I started doing the hard exposures that had gotten me stuck in the first place. I don't think I would have been able to make it through that without the safety that the hospital brought. In doing those though I think I managed to scared the whole staff and the weren't sure about these exposure things, they had no PTSD exposure training so I don't blame them. I had to be with a staff person when I did them because it was on a recording device that has to be monitored at all times when it is on the unit. So I'd listen to it, have a panic attack and throw up. That's what I've come custom to happening. They staff had no idea and freaked out when I threw up and felt like they didn't have the training necessary to do this on unit. I could feel it coming on and knew when I needed to be at a trash can or somewhere I could throw up.
Tuesday, October 20, 2015
Today was hard.
Lunch all by itself was an exposure for me. I had the option of sitting with a bunch of people I don't know or sitting in the most vulnerable spot in the dining hall. I chose that one, the one with the drink cooler and condiments behind it. The one where everyone was walking to and the door was behind me. I ate really fast, so fast I almost chokers and decided I should slow down bit. I got my lunch, ate it, and returned to the group room within 15 minutes.
Then we had to do group which was a great group, we had to think and could be vulnerable to ourselves and the group. I drew this.
Thanks for praying friends.
Thursday, October 15, 2015
Here's what's going on now.
Please continue to pray for me as it is still an awfully difficult process and I still have a long way to go. A good thing though is that I've been able to start crying again and I'll post pictures of the art I've made so far. The first set is a guy under a blue blanket representing total desperation, then the next one is called despair to hope since it's a fetal and prayer position. The next one is called acceptance.
Sunday, October 4, 2015
Checking in
How do you sum up 2 months into a reasonable blog post? The only way I can think of doing it is to just not do it. So there will be multiple posts. This one is going to be a general post with the nitty-gritty stuff to come later.
We had programing all day every day with some exceptions of Saturday and sunday. We had to be up in group with our goal for the day by 715 every morning and the night didn't end till 920 every evening. This made for really long days. There were smoke breaks built in throughout the day so I did get a 20 minute to 30 m ok mutes break every so often.
The lodge I was on was the last to eat every meal which at points made things complicated, like there not being dinner for us one Sunday night or when they would rum out of a particular food. Anyways the microwave was an essential part of eating any how me all the served.
The next important thing is there were 25 to 35 girls on lodge at any one time. It's like living in a dorm with 5 to 10 crisis going on at any single time. Exhausting... because those consist of panic attacks flashbacks dissociation nightmares and yes at one point or another I had all of those. That's going to have to be it for now, I'm still in the thick of everything. I'm not better yet, there is still tons of work to do and I'm just to tired to do this right now. Pray for me text me email whatever, I am feeling lost and alone.
Monday, July 27, 2015
Just Kidding
Rules are the same as before calls and letters are permitted.
the address is:
Timberline Knolls
Casey Holland
40 Timberline Dr
Lemont, IL 60439
This I think is a better option for me and it starts more quickly which is another good thing. I really wish all of this wasn't so crazy, up in the air and more planned out but that's not the case so we know God is sovriegn and believe it. So, we will be continuing to move or not with faith that God will put me where I need to be when I need to be there.
I won't have access to email or my phone starting tomorrow afternoon. I do appreciate your prayers, thoughts, letters and love.
Bye for now family and friends.
Sunday, July 26, 2015
What's Next
I'm home from residential treatment. Insurance only covered me for a week there and at the end of that week I didn't meet their criteria for that level of care so I'm home. I thought that I would be going back to the same place at a lower level but it hasn't seemed to work out over the past couple weeks.
I talked to my psychiatrist about what to do and she though a partial hospitalization program would be the next best step. I already did the one here in town and didn't find it to be helpful at all so we were looking to see if there was a more specialized one at the University of Iowa. Well, after a week and a half they never called me or my dr's offices many calls to them so we have no idea what's going on there or if it would even be helpful.
My brother and sister in law have offered for me to stay at their house and do a partial program in Milwaukee. The hospital just does psychiatric care and they have lots of specialized programs so I wouldn't be lumped into groups that wouldn't necessarily benefit from. It's the best option we have and most cost effective on us. Insurance shouldn't be a problem with this and I have a place to stay for a couple months. The only down side right now is that there is a two to three week waiting period because it is full. I'm still not doing well and life is hard so that's a long time to not have the help (especially since I've already gone two weeks) I need but at the same time it's not forever. Another advantage to this program is I will be able to be with my boys on the weekends. It ends at 2:30 every day so I will be able to drive home and see them. I will also have my phone and access to email and such which will be nice.
I am disappointed that I'm not on the down hill part of recovery like i think i may have been if I was able to stay at residential but at least now there is some direction. The residential treatment left me worse off than when I had gone in, talking over my history and trauma opened wounds up but there wasn't time to work on them. I had so many panic attacks while I was there and I also didn't sleep well. It was REALLY hard being there. So, I've been coloring a lot to help keep me calm and not going very many places or talking to anyone because I don't know what to say. I wasn't supposed to be home and I'm not ok, it wasn't like I was going away for fun. So, I'm here and if you'd like to contact me or email me I will be able to respond now. Thank you to the friends that sent me letters and gifts to help me through this time, I appreciate it more than you could know.
Friday, July 3, 2015
Bye for now
I'm headed out now.
The address is
Lemont, IL 60439
Wednesday, July 1, 2015
Processing...
After several days of processing what is happening and the likely hood that I will be going to Chicago I'm finally ok with it. I didn't want to go because it felt like I was being sent away and that I didn't really have a choice. I do have the choice and this is what we believe would help me the most, not that I want to go now, I'm just ok with it now. Insurance has confirmed that I have coverage for this but I have to be pre-certified now.
In the mean time I've had friends let me talk and cry with them and listen to really uncomfortable conversations with with the admissions people at Timberline and most importantly they've prayed for me. From what I was told yesterday I was probably going to be going over today. Well that didn't happen. They are waiting for records to be sent, I had to sign releases so everyone can talk to everyone else and of course there was a hiccup in that process. So this morning at 8:30 I was called and told that I'd have an answer from insurance this morning or early afternoon. That didn't happen either. Once records are received then they can call in insurance company. So for the last two days I've been told that insurance will likely approve it so be ready to go, they have a space open for me now. So I'm packed, ready to go whenever I'm cleared. But two days later I'm still home.
I've learned that I won't have internet access but I can do snail mail and maybe calls. After some period of time I can have visitors during certain hours. I don't know any of the details of these things at this point.
Friends from near and far have been praying and giving me words of encouragement that really are encouraging. So as I wait I am choosing to trust that God is sovereign and He knew I needed this time to be ok with going and to receive prayer and these words of wisdom from my wise friends. I love them and I'm so very thankful they love me. One friend sent this to me:
"Psalm 62:8
Trust in him at all times, O people;
God is a refuge for us.
pour out your heart before him;
I love that the psalmist here puts both crying out and trusting the same verse. I think sometime Christians can be tempted to think/suggest that if we are trusting then we won't be crying out, or if we are crying out then we must not be trusting. But here the psalmist expresses that we can do both -- both trust and cry out, because God is our refuge, both a refuge in that He comforts us (the way a father with a child should be a refuge) and in that He protects us."
This was helpful for me because I'm crying out, and I'm trying to trust.
Now, I'm trying to not be anxious but patiently wait.
Thursday, June 25, 2015
The Next Step
I was given a couple of options of where to go next. One is called partial hospitalization. It is intensive group therapy for 6 hours a day covering topics like coping skills, assertion, leisure, goal setting and group therapy in which the topic changes to address what the group needs. It's long and exhausting and not too helpful for me. For others it seems to help a lot, but for me there are a few things that get in the way. First, I don't like talking much when I'm well so when I'm sick I don't talk pretty much at all. Here, online, I can hide behind the screen and I can rewrite and reword things until they say what I really intend to say. So, to put me in a room where I have to talk about me and my struggles with people I don't know in a new place when I'm really not doing well doesn't really work. I do have to admit it is getting slightly easier to speak several days into it. That being said I answer direct questions and not much else. I only say things when I have something that I think is worth saying and I'm going to wait until there is silence. I have found that most people don't like silence and fill it quickly even if they don't really have anything to say.
The other thing that is to my disadvantage is that I've already taken classes on all these skills. I've learned them, I've practiced them, I use them. My startle reflex or 'danger meter' is way off. It doesn't seem to matter that I can tell myself that I'm in a safe place and that nothing is going to happen, I have a panic attack and end up throwing up half the time and gagging almost all the time. This isn't just happening when I'm in crowded places like it used to, it's happening all the time, everywhere I go. Every time I leave the house and go to a place that isn't on my very short safe place list, this happens. It used to happen when I was alone or only with the boys, now it doesn't matter if Aaron is with me. I used to be ok going places where I knew other friends would be, like the park, now I have to fight to get there and once I'm there I still can't engage people.So when you put all these things together it's not a pretty picture. My psychiatrist wanted me to try partial because in her words it'd be easier than going to Chicago or Kansas City. That way I wouldn't be away from my family and could still be home at night.
The bad news is it's not what I need. After telling my counselor what it was like and what things were covered she agreed with me that it really isn't what I need and probably won't help much. I really need trauma therapy. The hard thing about it is once a week with a counselor is going to be really difficult to get deep enough to help (remember I don't like talking) and take a very long time since I'd have to be back to 'ok' by the end of the session. Even though it would take a very long time, in my head it's safer. I already know my counselor, I trust her, and we've done some of this before. The problem is my world is getting really small and it's getting worse very quickly. I only have 3 safe places left to go, and one of those is only on certain days at certain times and a few friends houses that I will go to. Other than that I stay home. Because of this I have received another label. I think is is generalized anxiety disorder with agoraphobia. Basically what has happened is that I was having so many panic attacks and I hated them so much I started to avoid places that I'd have them. Generally easy to do until I started having panic attacks at places that I hadn't before. That's when my world started shrinking. We are trying to stop it before it gets to the point that I feel like I can't leave the house.
The other option is a residential treatment center. That means that Chicago or Kansas City option is now real and the option. They can do trauma therapy faster and with more intensity because they can keep me safe between sessions. They can also address all the other issues that I have going on at the same time.
So how do I feel about this? I'm scared, terrified actually. I'm going to a new place that I've never been to and have to trust new people. I will have to talk. I'm sad, sad because this is where I'm at right now, I can't pretend I'm not that bad, sad because I have to leave my family for a while. Sad because I'm going to miss Tobin's birthday. We had a really fun camping trip planned, now I will be in Chicago. Afraid to hope, I don't know if it will work. The amount of work that I'm going to have to do is daunting and I know it's going to be really difficult but then again nothing about this is easy.
So now we've done all the preliminary stuff to make sure insurance is good to go and they've checked with my dr. so I have an intake interview on Sunday. I think at that point I will find out what day I go. Initially they told me that it takes about a week to get through the whole admissions process. If that's the case it'll be the 1st or 2nd but really I have no idea. I'll be gone for at least 30 days, but they told me the average is more like 45 to 60 days. That's pretty much what I know right now. There is more information on their website that you can read if you'd like.
The website is timberlineknolls.com
I don't know why I'm going through this, I don't know what God is doing. Tonight though I learned a little about that though. I learned that me being open and honest has helped others be open up and be honest about hurting. So I know God is working though I don't understand it. I know God loves me. I know I am justified and adopted into His family. I know my God is bigger than this. I know He knows what i'm going through more than I have words to try to explain. My prayer is that I will believe Psalm 27 to its fullest, if you'd pray it over me I would appreciate it. I have the full understanding of what it feels like it be in Psalm 22. My pastor told me tonight that He gives beauty instead of ashes (Isa 61:3), I'm still working on believing that one...
Tuesday, June 16, 2015
Songs not Words
So, here goes...
Creed- Third Day
Worn- Tenth Ave North
Now for a change of pace:
In The End- Linkin Park
I've tried hard, I've tried to hold on hiding what's really going on inside of me when I'm out. but in reality In the end it doesn't matter, I've fallen so far, it's all in pieces and it feels like all the effort I've made doesn't matter, it doesn't make a difference I'll fail anyways why try.
Numb- Linkin Park
I've tried, I can't do it. every step, everything I try to do ends up being a mistake, making things worse than they were before. I feel like the girl in this video, I'm different and the world continues to move regardless of what I do. The girl has emotion at the end, not me, not when I am at the point of getting this song, I feel numb and have been told my eyes look dead.
Crawling -Linkin Park
These wounds will not heal... but I get these lyrics too, like all of them, unfortunately... These are my angry songs and that's what they sound like too so it fits...
ok one more from Linkin Park... I guess I really get their songs...
Papercut- Linkin Park
The thoughts in my head overwhelm me, even right now thoughts aren't racing but they are intense and hard to move past. and i'm always watching my back, everywhere all the time. I have an exaggerated startle reflex and it's not fun since it sends me into panic attacks sometimes.
But then I have family, friends and a church that does this.
Pray you through- Sixteen Cities
I'm out of words, everything has fallen in, I'm crushed. but they let me cry, not say anything, and tell the ugly truth and respond with truth.
So maybe... this is where
Healing Begins- Tenth Ave North
I guess that's enough for now, I could continue on but this is already a really long post if you listen to the songs.. (or even just read the lyrics).
This week I'm going to try something I've never done before to try to get at least a little better, out of this hole i'm in. My psychiatrist prescribed it but it's not medicine. I'll eventually say more about it once I know more and have tried it. My friends have also been doing research for me (because I'm not doing anything looking or trying) presenting me with a few more options of different things to try that I've never done before but study's show promise.






